Category Archives for Relationships

A Fortnight Of Busyness

Last year, when my much younger cousin said she wanted to come for a visit with her young daughter, I didn’t give it much thought because they are cousins from a favoured branch of my family tree with whom I enjoy spending my time. When I agreed that they could come, she immediately started scouring the internet for flights she could afford. As soon as she found one, she booked it and there was no going back.

However, as the day of their arrival approached, my anxiety level increased. What was I thinking inviting them – or anyone for that matter – to come stay with me when I know how limited my activity levels can be because of my pain? How am I supposed to handle daily outings to my city’s tourist magnets when some days I can barely handle going from my couch to my kitchen? Not to mention my body’s intolerance of high heat and the back-to-back weather warnings we’ve been getting because of extreme heat over the past few weeks.

Well, the year flew by and they arrived from overseas for their two-week visit yesterday afternoon. When I saw them walk out of the baggage claim area I was so excited to see them that the anxiety that had built up in me was forgotten. I gave my cousin’s little girl a huge hug, then embraced my cousin tightly. It was four years since I last saw them – not including our frequent video calls. It feels good to have them here, in my home, with me. I have activities planned to cover the span of time that they are here, but I’ve included rest days to make sure I don’t overdo it and land in the ER because of my eagerness to make sure they have a good time.

I know my cousin’s main reason for wanting to visit was to spend time with me regardless of my health, but I don’t want them to go home feeling disappointed in any way because of my limited ability do things. I also don’t want to have to resort to sending them out on their own every day or with people they hardly know because I’m in too much pain to move after a few hours out and about. These are some of the many thoughts that contribute to my anxiety. There are more – worse thoughts – but writing them all down means thinking about them, and I much prefer thinking about two of my favourite people in the world being here, just to hang out with me, for two weeks.

 

“Fly Away” – Lenny Kravitz

 

Doppelgänger Dilemma

As I traveled to a recent appointment, I saw a woman I can only describe as the doppelgänger of someone who was once a close friend of mine. The striking resemblance to my former friend startled me so much I almost spoke to her, but instead I just stared, which made her and then me obviously uncomfortable. The one thing that made it clear the woman standing in front of me wasn’t the person I had once known was that she was heavily pregnant, which is a stage of life my former friend has long passed. However, the style of her hair and the shape of her features could have made them twins.

The interesting thing is that the friendship I had with this former friend grew tremendously during her pregnancy with her second child. Before that, we did the usual things adult friends do while keeping each other at a comfortable distance: we hung out some weekends, went to the movies, and went shopping together, but during her pregnancy, she changed; she became more open and caring. I enjoyed this less critical and nonjudgmental aspect of her personality. I naïvely thought that this sensitive, empathetic side of her would become a permanent fixture and we would be friends until we reached old age. Unfortunately, after the birth of her child – and what I have to assume was the re-balancing of her hormones – she reverted to the person I’d known before, and being around her for more than a few hours at a time became difficult to bear.

I’ll never understand why some people believe it is okay to treat other people like crap and still keep the privilege of participating in their lives. Why anyone believes that as long as you apologize after making cutting remarks or insults all will be well again, until the next time they do the same, is beyond me. This woman’s behaviour towards other people was so harsh at times that witnessing it made me wince. We eventually went our separate ways because of a series of things she did to others and me where, even after having the negative and hurtful effects pointed out, she made light of the situations and felt we should act as if they hadn’t happened and move forward. As expected, that lack of acknowledgement and trivialization caused more hurt. For a long while after we cut ties, I missed spending time with her and being “auntie” to her children, but our values and beliefs about how to treat people were so different I couldn’t see a way back to fully trusting her and being open about my life. I believe that had I continued in our friendship that it would just have been a matter of time before more incidents arose and ended things.

A lot of time has passed and although I know her children are nearly grown and may not even remember me, I do think of them often; and after seeing this former friend’s doppelgänger, I felt the urge to reach out to see how she and her family are doing. Then I remembered her condescension at my past efforts to mend our relationship, and that I’ve run into her over the years since we stopped spending time together and how things always felt awkward and forced. I no longer feel comfortable sharing any of what is happening in my life with her because I don’t want to be subjected to her judgement or hear her disapproving tone. I think I made the right decision not to pick up the phone, but deep down I’ve been questioning how one short conversation could hurt…

 

Lily Allen – Friend Of Mine

 

First Blogiversary Reflections and Gratitude

When I started this blog a year ago, it was because I didn’t feel I was being heard in real life; especially by the doctors trying to figure out the cause of my illness. Filling the pages of a journal felt flat and empty. Although I was purging my emotions and thoughts in writing, it didn’t fulfill the need I had to be heard. I needed a place to speak uncensored and honestly about everything that had happened and what continues to happen to me because of my illness without worrying about judgement from friends and family. I created this space with the hope that someone would read my words and truly hear what I have to say, and maybe even learn from my experiences. I had no idea that this blog would lead to so many incredible things.

Writing here became a complement to my therapy sessions. I’m fortunate to have a great mental health support team while I make my way through the difficulties imposed on my life by illness and its unavoidable isolation. The talk therapy sessions with my therapist, which are mostly virtual now, help me to get out of my head and see what’s happening to me through the compassionate eyes of another person for a few hours each month. My therapist also helps me find positive ways to cope with my unending pain and overwhelming low, blue periods. However, writing here gives me an immediate outlet to articulate my thoughts and feelings. I’m connected to people who sympathize and want to extend their support, and people who truly empathize because they have lived through or are living with physical or emotional pain similar to mine.

Because of this blog, the support system I have now extends beyond my family and friends. The community I connect to stretches around the globe. It amazes me that each time I write here my words are reaching people in parts of the world to which I’ve never traveled. I have the opportunity to share my life experiences and be inspired by the lives of so many others living with chronic illnesses. Even though it might expose their vulnerabilities, people who connect to this space share their knowledge about living with chronic pain, medications, medical treatments, and self-advocacy in a world where doctors don’t always give the lived experiences of patients enough credit. This community makes me feel less alone and isolated, and I hope I do the same for some of them.

Others have helped to reawaken my creativity when the frustration I felt because of the haze of pain medications was at its height. I found muses here that brought poetry writing back to me with questions they ask in their lives about trust, truth, and change – among other things. I even found beautiful music that helps in moments when I need to calm my mind and body, and feel grounded so I can create my own art in the art/gratitude journal I never would have started without this blog. There are so many creative thoughts, images, and ideas exchanged in this community that it’s possible to learn something new every day.

Looking back at this year of writing, I can see how I managed to hold myself together. More importantly, I can read about the help and support I received here and in real life, and I’m grateful for all of it.

 

Elvis Costello & The Attractions – Every Day I Write The Book