Pain Clinic #9: Acupuncture Agony

I survived my first acupuncture treatment. I know that sounds dramatic, but I did have to sign a consent form and waive my right to sue the hospital and all staff if I had any negative reactions before my pain specialist started the treatment. Besides, once I outline what happened, that I characterize the outcome as survival might not sound far-fetched. After I signed the consent form, my pain specialist and the assisting nurse outlined all the possible known negative reactions I could experience during and after the treatment. The intention was to place ten acupuncture needles in my lower back close to my tailbone radiating outward to my hips, and more needles in other areas of my body. Because I can no longer lie comfortably on my stomach, we had to figure out the best position for me to lie down on the table to prevent me from moving during the treatment. The best position turned out to be lying on my left side with my right leg bent at the knee and supported by a pillow. I had another pillow placed under my head and both arms stretched in front of me – reading that back it sounds more complicated than it was. In anticipation of the bright lights of the treatment room, I brought a sleep mask with me that I put on to create a more relaxing mood.

With me lying steadily in place on the table, my pain specialist moved my clothes aside to get access to the bare skin of my lower back. She spoke to me as she started to insert the needles asking if they were causing too much pain as she placed them. Unfortunately, even though she didn’t insert them too deeply, the pain of each needle she put under the skin close to my tailbone was unbearable. After she inserted the fifth needle in the flesh close to my right hip, she decided not to put anymore into my back. I’m glad she stopped because I’m not sure I could have handled the pain of five more needles. My pain specialist placed the sixth and seventh needles on the backs of each of my hands in the soft pad between my thumbs and index fingers. The nurse set a timer for ten minutes, and then it was lights out.

During the first ten minutes, as I was lying on the table in the semi-darkness, I could feel an intense, tingling sensation radiating from each needle in my back and hands. It was uncomfortable and not at all like past soothing acupuncture treatments. When the timer went off the nurse came back to the treatment room to adjust, or as she said “twizzle” each needle. She set the timer for another ten minutes and left me alone in the dimmed room once more. The discomfort from the needles continued to grow. The familiar feeling I get at the beginning of a pain flare up started building in my legs, but there was still time left on the timer. While I waited for the time to run out, I hoped that the removal of the needles would ease the discomfort.

At the end of the twenty-minute treatment, my pain specialist returned to remove the needles. She delicately plucked each fine, silver sliver of metal from under my skin, and the nurse used cotton pads to dab blood away from some of the insertion points. My pain specialist told me to sit up slowly. As I sat up, a wave of nausea hit my stomach. I wanted to vomit. I sat still for a moment then tried to stand up. I felt dizzy. I had to sit back on the table. The nurse and my pain specialist were very concerned and made me lie back down for about 30 minutes. When I finally felt steady enough to stand up, the nurse said she could tell that I felt better because the colour had returned to my face. However, there was still concern that I might need more medical attention. She told me that if the nausea and dizziness continued or worsened that I should go to the emergency room.

As the day progressed, the nausea and dizziness started to fade slowly, but the pain flare up that followed was as unbelievable as it was unexpected. For the first week following that treatment, I had soreness in the areas where my doctor placed the needles; tingling in my hands and the soles of my feet; that tingling turned into fiery pain from the soles of both my feet all the way up to my pelvis and lower back, and I felt exhausted. I couldn’t sit comfortably and standing or moving around made the pain worse. I tried massaging the arches of my feet, my ankles and thighs but the added friction made the burning pain worse. Even my hands tingled, although I only had a single needle placed in each one. By the time I went back to the pain clinic for the second treatment a week later, I was so sore and stiff that my pain specialist decided against more acupuncture and had to increase the doses of my pain medications to help me cope with the pain. She also expressed surprise that I returned for another treatment and told me she hadn’t expected me to make it to the appointment because of the shape I was in after the first session, and how much pain I was still in while meeting with her. Even though I was still in so much pain, it never occurred to me to cancel the treatment.

It’s been a month since I had that acupuncture treatment and my pain is just getting back to a level where I can cope, even with the higher doses of pain medications. Because I had positive experiences with acupuncture in the past, this outcome came as a real shock to me. I knew that it was possible to feel some nausea and dizziness afterwards, but I wasn’t prepared for the intensity of what I experienced. Since going through this I found AcuTake, an online publication that provides information about acupuncture. According to an article on the site, “7 Acupuncture Side Effects That Are Normal”, one of the potential side effects is “worse symptoms” or what “is sometimes referred to as a healing crisis” because acupuncture “awakens your self-healing capabilities” and “can cause not only an exacerbation of current symptoms but also the recurrence of previous ailments that had been dormant.” The article further states, “The good news about this side effect is that it’s a sign that things are moving. In the case of acupuncture, this means that the primary objective is being met. That is, you are starting to transition on multiple levels from stuck to unstuck.”

I don’t know how true it is that I have to feel worse before I get better, but I have a follow-up appointment scheduled with my pain specialist in about two weeks and we’ll definitely have a conversation about whether the agony that comes with acupuncture will benefit me in the long run.

 

Stevie Wonder – Ordinary Pain

Pain Clinic #8: Time For Acupuncture

I’ve been waiting for space to open in the pain clinic’s treatment rooms to start receiving acupuncture since the end of October and I was starting to think they had forgotten about me. The wait for an appointment was worrying my friends and family too, and some suggested that I should seek out an independent acupuncturist or naturopath to receive the treatments. Thankfully, I don’t have to go that route because I received a call yesterday from my pain specialist’s assistant with dates for a series of appointments that start in two weeks. I have four 60-minute treatment sessions booked with my pain specialist who is also a trained acupuncturist. Having her treat me with acupuncture, makes me feel more confident that the treatments will be successful because she knows my history with pain, knows exactly where in my body the pain originated and where it spread to, she has immediate access to all my medical records, and she can adjust my medications if necessary.

The breadth of my pain specialist’s knowledge and openness to alternative treatments for chronic pain, make me feel less anxious about trying something new. Years ago, I went to a naturopathic clinic as advised by a close friend to try something new for terrible migraines. The something new then was acupuncture. The naturopath who treated me would place needles under my skin in three or four areas of my body. After the first pinch of each needle faded, it was almost impossible to feel where they stood. With the needle placement completed, the naturopath would then dim the lights and leave me alone to rest for about 30 minutes. When she returned to remove the needles, I would feel as if I had rested for hours. Unfortunately, acupuncture didn’t rid me of migraines but that rested feeling would stay with me for a few days after a treatment; and the treatments did reduce the frequency and severity of my migraine episodes, which was a big improvement in my life.

The memory of the pain relief I gained because of those acupuncture needles is still with me. And I also remember that those fine, silver needles didn’t only target my migraines; they calmed my entire body, somehow quieted my mind, and even helped me sleep better. I am hoping for similar results from these upcoming acupuncture sessions because my entire nervous system needs calming. The way my doctors explain it to me, my nervous system is now like a hyperactive child who has eaten a bowl of sugar. It has run at that level for almost three years in response to the pain from a benign growth that no longer sits in my pelvis. This overdrive needs to stop, and acupuncture – I say this with fingers crossed – should help to slow it down.

 

David Bowie – Absolute Beginners

Pain Clinic #7: Trying Alternative Pain Treatments

I had my third appointment at the pain clinic since having surgery in August. Each appointment I have makes me aware of how fortunate I am to have access to such an incredible resource. My pain may not be gone, but I have specialists working to support me and trying to find the root cause – and hopefully the cure – of my pain. My primary doctor at the pain clinic is a wonderfully compassionate woman who is open to exploring as many alternative treatments as possible to treat my pain.

During this appointment, we reviewed my pain medications. I’m still taking a considerably higher dose of the opioid pain medications than I was before surgery, but I’ve been trying to decrease the doses over the past few months. I’m keeping a daily log detailing how much I take throughout each day. My pain specialist encouraged me to continue keeping this log because it’s helping to identify trends in my pain. I can pinpoint when I have a pain flare up and what activities may cause it, and whether I need to increase the doses of my pain medications. To support these trends she wrote me prescriptions for each of my pain medications with quantities large enough for me to increase or decrease my doses as my pain dictates.

Acupuncture was the next thing we discussed. My pain specialist is a trained acupuncturist. By all accounts, she’s highly skilled. Knowing that as a medical doctor – she’s an anesthesiologist – she has a holistic approach to treating pain makes me feel encouraged. One of my next appointments with her will be in the treatment centre of the pain clinic – where I had my nerve block  – for acupuncture. Her hope is that acupuncture treatments will help to reduce my pain and my need for such high doses of pain medications. My hope is that the treatments will deliver those results, and much more.

We also talked about the Mindfulness-Based Chronic Pain Management (MBCPMTM) program offered at the same hospital as the pain clinic. The program teaches patients “how to manage their chronic pain and illness through Mindfulness and meditation practice, and better lifestyle skills.” It’s based on the Mindfulness-Based Stress Reduction Program (MBSR) originated by Jon Kabat-Zinn. My pain specialist is referring me to the program to give me another option for managing my pain. The idea for me to try this program originated with my therapist because our therapy sessions include mindfulness practices. My pain specialist believes this program will be a beneficial addition to the practices I’m already including in my life to cope with my pain. I believe, whatever the outcomes, I have an incredible support system that keeps working to find solutions to get me pain-free.

 

Third Eye Blind – Semi-Charmed Life