Another Scan, Another Problem

My illness is starting to feel like a long meandering river that you might see photos of in National Geographic Magazine, with a caption describing how it formed over centuries under the pressure of slowly receding glaciers. I know that probably sounds overly dramatic but the curves my body can throw at me seem endless. The farther I fall into life with chronic pain the more my body changes and the more I learn about the human body – my body especially – that I never could have imagined needing to know three years ago. Each test, scan, or invasive procedure reveals another unexpected facet of what could be THE SOURCE or at least a contributing factor to what is happening within me.

I recently had a series of appointments with one of my specialists. He’s the gynecologist who has been an incredible advocate for me. He managed many of my referrals, even though he didn’t have to, when I became his patient a few years ago, to make sure that I connected to the right doctors. He’s also the doctor who removed the offending growth from my pelvis last summer when it turned out that my MRI results were misleading and I didn’t have a rare congenital condition which could have led to the removal of most of my rectum. I suspect that as long as my pain continues, I’ll be in and out of his office a lot in the coming years.

The first appointment with him was at the beginning of April for my bi-annual check-up. After I detailed how things were progressing – or had not shifted at all – in the preceding six months and since the removal of my pelvic growth, he ordered some tests for me. He wanted to rule out the possibility that he missed any small growths during my surgery that could now be growing larger; or that the one removed was regrowing and causing me to have continued pain. The most dreadful of the tests he ordered was the abdominal ultrasound series. This ultrasound consists of two parts: an abdominal scan that starts near the diaphragm in the area just below my rib cage and works down to the lowest point of my pelvis; and a transvaginal scan, which requires the insertion of a condom-covered probe into the vagina. I dare anyone to guess which of the two scans is my least favourite – and probably so for most women. Just saying the word “transvaginal” makes my skin crawl, and having to endure the procedure with my existing pelvic pain feels indescribably cruel.

After having to reschedule the appointment for my scans because my body refused to cooperate long enough for me to make it to the hospital to have it completed, I was finally back in the gynecologist’s office at the beginning of June for my results. It was the same day I ran into the Doppelgänger of a former friend while trying to cope with some difficult feelings. Of course, the scan results added an extra layer of angst to that day. The best news was that there were no new growths clinging to the walls of my pelvis to cause concern, but images of my uterus told another story: the report detailed two objects in my uterus. The first is a small fibroid, a noncancerous growth found in the uterus that often appears during childbearing years, which my gynecologist said is so small it doesn’t merit much concern. Of course, my body being my body, there is another growth about an inch in size I do have to worry about, a uterine polyp. Uterine polyps “are growths attached to the inner wall of the uterus that extend into the uterine cavity. Overgrowth of cells in the lining of the uterus (endometrium) leads to the formation of uterine polyps, also known as endometrial polyps. These polyps are usually noncancerous (benign), although some can be cancerous or can eventually turn into cancer (precancerous polyps).”

This polyp could explain some symptoms I have in addition to my chronic pain that originated in my pelvis: my unpredictable and excessively heavy periods, and severe period cramps. My gynecologist believes that removing it can help to relieve these symptoms, which are probably my body’s way of trying to expel the foreign body in my uterus. So what are my options to deal with this inch-long polyp? I could continue to have it monitored at 6-month intervals to make sure it doesn’t grow or change in any other way or I can have it removed now. That’s right, more surgery. Because, although[m]ost uterine polyps are noncancerous (benign)… some precancerous changes of the uterus (endometrial hyperplasia) or uterine cancers (endometrial carcinomas) appear as uterine polyps.” The procedure to pluck the polyp from my uterine wall can take place during day/ambulatory surgery, which means I shouldn’t have to stay in the hospital overnight. However, if my ongoing negative responses to physical stimuli and my body’s alarming reactions immediately after my surgery last summer are any indication I will most likely need to stay in the hospital at least one night for observation.

I have an appointment later this week to schedule the polyp removal and discuss the possible outcomes of the procedure. After the surgery, the polyp will be biopsied to make sure it’s benign. Then I’ll probably have a series of uncomfortable transvaginal ultrasounds scheduled to monitor whether the polyp makes a comeback or any others spring up. Plucking it out might not mean it goes away forever – there’s a rare chance it can recur –, but at least the physical symptoms, and the pressure and anxiety I feel while thinking about it taking up space in my uterus should lift – until the next thing shows up…

 

Billy Joel – Pressure

 

All Those Seeds

I read a post from someone who visited my blog earlier today and it reminded me of what I went through this time last year. I was in another downward spiral because my reluctant surgeon couldn’t seem to move far enough forward in her thinking to get me into surgery. For almost a year, in one appointment after another, she sent me staggering emotionally from hope to despair about what my life might look like based on one worst-case scenario after another. She eroded any confidence I might have held in her. Thankfully, even through the fog of all my pain medications and my endless pain, I was able to feel and recognize that I deserved better than what she was offering.

The few visits I had with my second opinion surgeon, led to swift action and although I wasn’t cured of my pain, at least the thing that was growing inside my pelvis that started all of this is gone. Without the confidence and compassion of my second opinion surgeon, my fears and anxiety would have grown exponentially. Instead of making calm, informed decisions, the way he did, and now the rest of my current medical team help me to; everything would have continued to be reactionary based on my desire to stop feeling pain without understanding the suspected source and mapping out the best treatment plan for me.

I hope Snowdroplets finds the same compassion, expertise, and thoughtfulness I did as she seeks out her second opinions and makes her choices. I also hope that mirroring her words back to her will help to keep her positive and confident that seeking out doctors that make you feel comfortable and secure is the best medicine.

 

All Those Seeds

 

Zentangle: Residual Feelings

I didn’t sleep much, or peacefully, the many times I dozed off last night because yesterday was a bit of a strained day for me and I couldn’t shake off the residual feelings of the day. First off, I had to be up early for an appointment with one of my specialists. That meant I had a lot of anxiety the night before, and while getting ready in the morning, because getting anywhere on time these days is difficult for me. If I have to wake up early for an appointment, I don’t get a good night’s sleep because I feel anxious about the possibility that I might oversleep and miss it altogether. Then getting showered and dressed, even though I checked the weather report and had an outfit picked out, is a major production that always takes longer than any amount of lead-time I give myself to get out the door allows. I keep hoping that I’ll finally figure out the right ratio of time I need depending on the level of pain I’m feeling on a given day, but for now I’ll have to live with the crapshoot that I might get to where I’m going on time.

However, my early morning appointment wasn’t the only thing that made it such a difficult day for me. Yesterday was the birthday of my great-aunt M. She passed away about 15 years ago after a long battle with cancer. She was a sweet, caring woman. Everyone who knew her loved and respected her. Even though she was my grandmother’s sister, my great-aunt M and I had a closer relationship. She was one of the few people in my life whose love and affections I never had to question, and I miss her terribly.

Throughout my life, Auntie M was a positive presence who always did things to make me feel special. Because she lived overseas, I didn’t see her often but I did have opportunities to spend time with her during long visits over summer vacations and other holidays and she always worked to sustain a significant presence in my life. When I was a child, she would send me packages with a mixture of toys, clothes, and sweet treats. I loved opening those gifts and seeing the pretty things she had taken her time to pick out just for me. As I grew older, Auntie M wrote me letters and sent me cards that always arrived on time for my birthday and holidays, and there were her phone calls just to say hello.

As much as I miss my Auntie M, I know I should be relieved that she’s not suffering anymore from such a long, terrible illness. Because it wasn’t possible to celebrate her birthday with her yesterday or chat with her to hear her reassure me that everything will be fine the way she used to; I spent my sleepless time doing things to distract myself from my currently hard to cope with life and sadness. I like the way this piece turned out and I’d like to think it turned out so well because Auntie M was helping me to steady my pen like she used to support me when she was alive.

Tile 36 Shaded - Tangles-Sand Swirl-Leaflet-N'Zeppel - String 008

Tile 36 Shaded – Tangles-Sand Swirl-Leaflet-N’Zeppel – String 008