One of the best things I’ve ever done for myself is start my art/gratitude journal. Starting this journal connected me to my quiet self and gave me a tool to help heal myself. Since coming out of surgery – probably the second day after – I started drawing and colouring. With drawing and colouring, I was able to tune out a lot of my pain, other patients, and the busyness of the medical staff and support staff around me.
The first things I made while I was in the hospital contain a loving kindness meditation mantra that I learned many years ago in a mindfulness meditation course. The mantra is
May I live in safety May I be happy May I be healthy May I live my life with ease
I often say this mantra when I feel anxiety. It helps to calm and ground me. Drawing it helped me feel less anxious about all the things that were happening to me in the first few days of my recovery. Things like the drastic drop in my blood pressure (it fell to 60/45), the unbearable pain flare when they removed my epidural, then my blood pressure spiking in response to the pain, and starting to walk again, which was incredibly painful. It was all very intense, so I needed something to keep me calm; as the doctors and nurses did their jobs to get my vitals back within normal ranges and prepare me to go home.
May I Live In Safety
May I Be Happy
May I Be Healthy
May I Live My Life With Ease
I’m glad I had the forethought to pack my art/gratitude journal, my Zentangle notebook, a new sketchbook, coloured pencils, and markers in my suitcase. I’m glad I’ve found things I can do, even under the fog of pain medication, that relax and calm me while giving me a creative outlet. The things that so many people believe are meant only for children have become significant tools for coping with my pain, and they are contributing to my healing.
This all feels so morbid. I just finished assigning my Power of Attorney and writing a letter that details my final wishes. I haven’t done these things because I don’t expect to survive my upcoming surgery – to be clear, I expect nothing less. I’ve done them because I can no longer escape the reality of my mortality. Even though I knew the time would arrive when I would need to do them, I didn’t think it would be so soon. Not having children has granted me the freedom to not look too closely at the “what ifs” and “what coulds” of the future near or far, until now.
My friend J will be one of two people who can make decisions about what can or cannot happen if things don’t go well on Tuesday. It’s a lot of responsibility, I know, but I trust her with my life and I trust that she will follow my wishes without hesitation. We talked about everything in detail yesterday. Until yesterday, she had a general understanding of how I want things handled, but now there are no questions. I will have to have the same conversation with the other person tomorrow or Monday.
I can’t fully articulate all of what I’m feeling right now. However, putting things in writing released a bit of the pressure and stress I’ve been feeling the past few weeks. Maybe this will help me sleep better tonight.
I feel as if my life is in hyperdrive since I got my surgery date. Yesterday while I was having lunch with a friend I hadn’t seen in eons, our conversation was interrupted by a call from my surgeon’s office telling me that my pre-admission appointment was scheduled for today at 11:00 AM. I know my surgery is just a few weeks away, but everything is moving so quickly I can barely catch my breath.
This morning I went into the Pre-Admission Department at the hospital at 10:45 AM and I didn’t leave until just before 3:00 PM. Seven different people handled my chart. The first was a dry, nondescript, administrative clerk who completed my intake making sure all of my information was current and correct, that I have an emergency contact, and confirming that I understand the reason I need surgery. I found that funny in an “I better know by now why I need surgery or I’m in big trouble” kind of way. She had me sign all the necessary consent forms then directed me to the waiting room from which I was eventually collected by a lovely, bubbly nurse named Jean.
The entire time I was with Jean was light and filled with laughter. She went over some of the same information the clerk had covered then realized that some necessary people in the pre-admission process had not been contacted to come speak to me. She disappeared from the exam room for about ten minutes and walked back in triumphant that she had been able to contact Jo and Joan who were both available to come speak to me about vital post-surgery information. Jean’s responsibility was to record all my medications, confirm any allergies, and cover everything I have to do the day before and the morning of surgery. On the day before surgery, I have to fast all day except for the clear fluids I must drink because I have to do a bowel preparation similar to what you do before a colonoscopy. I did it last year for a colonoscopy and it made me feel awful, so I’m not looking forward to doing it again. I also have to shower with a special antiseptic soap the night before and the morning of the surgery. I had to buy both the soap, which comes with special instructions for the order to wash your body parts, and the bowel preparation solution from the hospital pharmacy on my way home.
The next person I saw was Jo, the Ileostomy Nurse. It is her job to find the best spot on a person’s abdomen for the placement of a stoma. What she actually has to do is draw a mark on your abdomen using a kind of permanent ink pen. Unfortunately, the timing of my surgery falls outside of what she considers an ideal window of time for a mark to still be visible enough for my surgeon to see if I end up needing to have a stoma. I will have to call her the week before my surgery and go into the hospital so she can draw on me – I’m lucky the trip to my hospital is not a long one. Jo will also recommend – if I need one – which of the available types of stomas she believes will work best for my body type and she will teach me how to care for it. As lovely as she was to me, my hope is that the mark she makes on my abdomen will not have to be used.
Then I met with Joan. Joan’s job was to prepare me for what to expect after surgery. When will they make me sit up for the first time? When will I have to get out of bed and walk for the first time and for what distance? How will my deep breathing allow them to gauge my pain level? When will I be allowed to drink something? When I will have my first solid foods – which may not fall within the realm of what’s considered normal because my surgeon has very strict rules for his patients after bowel surgery. She also explained the proven science behind these benchmarks and a few things I had never heard of before. For instance, after surgery, chewing a stick of sugarless gum triggers a reaction in the digestive system that helps you pass gas, which is a sign that your bowels are working. So I have to take a pack of sugarless gum with me to the hospital that I will chew three times a day to get my digestive system working more quickly and easily. This will be interesting because I never chew gum, but I suppose I can make an exception this one time.
Joan was followed by a lab technician whose name I can’t remember, but who had a cheerfully coloured manicure. She had a pleasant demeanor and was sensitive to my need to have her use the butterfly needle usually reserved for children because my veins don’t behave as they should during blood collection, and the children’s needles minimize the pain and bruising. She took five vials of blood for a variety of tests, and although she told me what they were for, the only thing that stands out in my mind is a pregnancy test – HA! The lab technician with the cheerfully coloured manicure also did my ECG, which was finished in less time than it took her to place all the ECG pads and electrodes on my body. I hope the test showed that my heart is still in the fight.
My Anesthetic Clinic consultation was the last act of the day. An Anesthesiology resident came in to see me just as my friend J and I each finished inhaling our lunches of coffee shop sandwiches and warm donut holes. He had a form with mandatory sections that needed information. I had to jump back to two years ago when the ordeal that is my illness started at another hospital, talk about the reason for each of my current medications, detail past surgeries and invasive procedures, and tell him what I already know about the proposed pain management plan so he knew where to start. He started with the night before surgery, which will not go as most do with me fasting because I will be completing my bowel preparation. Then he talked about the general anesthetics I will receive and the epidural option, which I assured him I do not consider an option. Upon hearing that, he launched into the list of benefits and side effects associated with epidurals where the benefits far outweigh the risks for me. He then instructed me to take my current medications on the morning of the surgery. He ended by telling me about the Acute Pain Service. How they will monitor me daily and how transitioning me from the epidural to oral pain medications will depend on how well I am coping with pain. He then left the room to check my blood test results and confer with the lead anesthesiologist.
When the Anesthesiology resident returned, he had the lead anesthesiologist in tow. They had some bad news for me. My hemoglobin levels are low, even though I’m taking an iron supplement. The level is low enough that it could pose a problem for surgery. I will receive a call from the Blood Conservation Team next week to come up with a solution to raise my levels in time for surgery so they won’t have to consider transfusing me. In the meantime, they instructed me to eat as much red meat as possible, which is going to be hard because I hate beef and I eat a mainly vegetarian diet but I’ve come too far to let a little bit of meat stand in the way of recovering my health. Is anyone having a barbeque this weekend?
David Bowie – Space Oddity (Ground Control to Major Tom)