Tag Archives for art journal

Gratitude and Creativity: We Rise By Lifting Others

The wife of my friend R has cancer. It started as colon cancer for which she had surgery to remove the tumour followed by radiation; and her doctors believed they removed all the cancer. Unfortunately, after a follow-up CT scan they found a new cancerous tumour in her liver. They surgically removed that tumour along with a significant piece of her liver and again treated her with radiation. About two months ago, they found another tumour on her liver. She started radiation treatments for the new tumour a few weeks ago, trying to shrink it, but her oncologists now believe she needs another surgery to remove this tumour too. The looming question is whether there is enough of her liver left from the previous surgery to cut any more of it out.

My friend R is losing sleep over this every night, but he’s trying not to let his wife see it. He’s worried about his wife and her prognosis, but can’t let her know how worried he truly is. In their marriage, he is always the level-headed, strong, practical, rational thinking being. He’s the one that gets things done and takes care of everyone. He manages the household finances, figuring out when they can splurge and when belts need tightening; and he works at pulling his introverted wife out of her shell by trying to include her in his various circles of friendship, taking her on trips to far off places, and always putting her first.

Unfortunately, R’s wife has never warmed to me: even though he and I were friends, long before he ever met her. Her excuses for not liking me have ranged from I’m too young – they are about fifteen years older than me; I’m single – my past relationships have never changed her attitude, and I learned that only a marriage will suffice; and I’m too attractive, which as far as I’m concerned is about her lack of self-esteem. R has hosted dinner parties, where his wife has exchanged so few words with me it was obvious is efforts to spark a friendship between us, were for naught. So, our friendship – R’s and mine – exists away from his wife’s lack of fondness for me.

Even though she’s not fond of me, I’m worried about her. I’m worried that the recurrence of her cancer is a bad sign. According to R, one doctor is concerned that during the last surgery – when they removed the first tumour on her liver – they may have taken too much of one lobe of her liver to make sure that the tumour would not regrow. If that’s the case, they may have to rely heavily on radiation to shrink this tumour then follow up with another CT scan to see whether she needs more radiation or if they have to attempt to remove the remaining mass with surgery. For both their sakes, I’m desperately hoping the radiation works.

Recently, R told me that his wife has lost interest in all the hobbies and activities she used to do before she became ill. I’ve decided to send her a gift that I hope will lift her spirits. I know that she loves flowers: she wanted to open a flower shop when she retires from her current career. I can’t give her a flower shop, but I can give her some adult colouring books with drawings of flowers and gardens, and a set of coloured pencils. My hope is that the simple act of colouring will soothe her mind, distract her from thinking about her illness and pain, and, I hope, re-spark her interest in the things she used to love doing – as it has for me.

We Rise By Lifting Others

I can’t count all the ways over the course of our friendship R supported me through a tough time, or said or did something to lift my spirits. I want to support him and his wife in any way I can. I know that what I’m doing isn’t much, but when I told him about my plan, he was happy and grateful; and I hope it helps his wife, even if it’s just to put a smile on her face.

 

Cyndi Lauper – True Colors

 

Gratitude and Creativity: My Body Needs Quiet

Everyone in my life now knows that when they ask me to do something that requires me to shower, get dressed, and then leave my home that the plans we make are tentative. They know this because of days like those that I’ve had for the past few days. On Saturday afternoon I was in so much pain I wanted to cry – of course, no tears would come. The reason I wanted to cry wasn’t solely the level of pain. It was also because there were things happening in my city this weekend and in the lives of some of my friends and family that I’d be able to participate in, if I were pain-free. Every time I have to say no to something because of my pain, it makes me feel sad.

As it is, now the only things I go to no matter how I feel are doctors’ appointments. Although, there are some exceptions when – like a few weeks ago for my dad’s retirement party and my friend J’s milestone birthday dinner – I force myself to go out despite my pain level. I went to both of those events feeling excruciating pain and knowing that I would be in even greater pain afterward. I also knew that it would take a few days to recover from that increased pain. Recover in the sense that my pain returns to levels where I can cope. In this instance, it took the better part of a week to get to “normal” after the party and birthday dinner, which took place within days of each other. The length of time it took to get to a pain level where I could cope was a reminder that I need to listen to my body and accept – and respect – what others may view as limitations, but I know are messages from my body I shouldn’t ignore.

My Body Needs Quiet

I’ve learned, over the past two years, that when I start a day with above normal levels of pain, that I have to listen to my body. What my body is telling me – screaming at me – on these days is that I need to be still; I need to rest; and I need to find quiet. It’s not always easy, but I’m getting better at listening to my body. That means this weekend because of the high level of pain I was feeling, I missed spending time with J, an arts festival, and my cousin’s baby shower that would have required me to exert a lot of energy – and probably pay for it with more pain. I missed those events and I had to do so without any regret.

Unfortunately, missing the physical activity involved in fun events isn’t the only thing that requires mindfulness of my body’s messages. In recent weeks, I’ve been trying to support my cousin who’s been having a tough time in her personal life. I’ve spent a lot of time on the phone with her just listening and being a sounding board, and I think it’s starting to take its toll on me. Because I want to show my support and let her know I’m there for her, I’ve been ignoring my need for quiet time.

Quiet time is something I’ve always factored into my self-care; and I think it’s important for everyone, but of even greater importance for anyone recovering from an illness or living with chronic pain. Reducing the busyness of the mind helps to reduce stress, which can slow recovery or cause pain levels to increase. I believe the continuous activity of phone calls and text messages – and my increasing worry for my cousin – are affecting my pain levels. As much as I know she’s depending on me for advice and comfort, I also know that my body needs time for quiet. I know this probably means not answering every call or responding to every text message from my cousin, but I have to re-establish the necessary balance of self-care for my body, and that includes quiet time.

 

Depeche Mode – Enjoy The Silence

Gratitude and Creativity: Smile Every Day

Sometimes, when sleep eludes me at night, I dig through the endless pages of the interwebs trying to find things that don’t make me feel bad about not sleeping. I know I’m a grown woman who can do whatever she likes at any time of the day or night, but not sleeping often makes me feel guilt and anxiety. Writing that makes me feel a bit silly, but it’s the truth. What’s most significant about that truth, is that it’s a sad truth because I’ve had issues with sleep for as long as I can remember, so that means my body has been holding a lot of guilt and anxiety about not sleeping for a long time. Sleep is the lynchpin to good health: mental and physical, so as things go I’m not doing too well.

Sleep aside, last night I landed on a page with inspirational posters. One of them was very simple: Smile Every Day. It made perfect sense and affected me so strongly I had to create a poster of my own. At about 11:00 PM last night I grabbed my sketchbook (the one I started when I was in the hospital), a pencil, and all my coloured markers. The idea I had forced me to log on to Pinterest to find a drawing tutorial because I couldn’t figure out how to draw a mouth. Yup, I couldn’t figure out how to draw the thing I shovel food into every day and from which drool happily flows when I do finally sleep thanks to my night guard. In the end, I found an easy tutorial and I was able to draw a mouth that I think fits perfectly with the quote and my design.

Smile Every Day

This quote affected me so deeply because when I started working in sales many years ago, in the sales/customer service department of a software company; one of the things they taught us in training is that before we answer the phone we should always smile. Smiling boosts the tone in your voice and makes you sound positive when speaking to someone on the phone. Some people kept a small mirror at their desk as a reminder to put on a smile because there were days when we didn’t always feel like smiling.

Jumping to the present day, I realized when I read that poster yesterday that I haven’t been smiling every day. I’m not depressed. But my pain doesn’t’ make it easy to smile. I’m also back at home again and alone most days, which means I don’t have anyone to smile with unless someone comes to visit, or I get a phone call.

I’m glad I found that page last night. Now I have a reminder for myself to smile every day. Regardless of how much pain I might be feeling, if I’ve had very little sleep, or the sun isn’t shining; I’m going to smile every day.