Relationships and Chronic Illness: It’s Not Me, It’s You

“We see things not as they are, but as we are. Because it is the ‘I’ behind the ‘eye’ that does the seeing.”Anaïs Nin, Author

This is one of my favourite quotes.

It reminds me that I—actually all of us—must be mindful of the assumptions and judgments we make about people in our lives and people in the world around us because we rarely know all the reasons, past or present, that affect someone’s actions and/or behaviours.

Continue reading

Life In Boxes

We each live life in our own boxes. Some of our boxes are bigger than other boxes. Some of them allow the flow of information through their walls. Others are made from rigid materials that permit no changes. Fortunately, we can decide when and if the walls of our boxes will ever come down. Still, as much as we are constrained by boundaries of our own making, the things that hold us back the hardest are usually beliefs ingrained in our societies and the institutions built around them.

These beliefs and institutions are the foundation upon which all our boxes stand and they influence us all from the earliest stages of our lives. They direct the way we see the people in boxes around us and ourselves. They often affect the choices we make about which people in which boxes we can and cannot connect with; and if those beliefs and institutions remain stagnant or rile against becoming open and inclusive of all people in all boxes, those of us who have been educated solely by them will never open ourselves to change.

 

 

InkTober 2017: Day 2 – Divided

Divided: that’s a loaded word for me. For a long while, I’ve been feeling that my life is divided. It got that way four years ago, on the day my illness showed up. I didn’t know it then but, since the first moments, it divided time into before and after illness. I’ve tried not to think of my life that way, at least not from a negative perspective, because I know that my life is greater than these two dimensions. However, the truth is, I have to acknowledge that my life is not the same.

It may never be what it was before the day two extra-strength Tylenols weren’t enough to soothe the pain as it grew in my lower abdomen. It may never be the same as it was before I lost control of my trembling body. Trembling that became uncontrollable shaking because the pain was so overwhelming. My life may never be the same as it was before the ambulance ride that took an eternity to get me to the hospital emergency room. Before the months of multiple doctors’ misdiagnoses or the reluctant surgeon’s year of waffling about whether she could or would ever try to help me by doing the surgery she trained to do. Nor may it become the same, as after illness, since finally having surgery didn’t result in the end of any of my pain.

The interesting thing is that the space I occupy now is nowhere near after illness. It can’t possibly be when there are moments when all I can think about is freeing my body of pain and when that pain-free time will become permanent. My current existence is probably better characterized as ‘since illness’, which is an altogether different division. So far, each pain treatment I’ve undergone has delivered negligible short-lived relief or completely failed; and if the ongoing pain treatments are any indication, I may never achieve an after illness state.

Yet, I must continue living without losing hope, or my sanity. I have to keep myself grounded to avoid causing myself unnecessary grief because, as I’ve been taught: suffering is wanting something other than what exists in the present moment. Therefore, looking back at what was in my past (before illness) or what’s in store for my future (after illness) is unhelpful.

My life didn’t stop because of my illness. Although I fully accept that it changed, there’s no need to divide it into pieces and compartmentalize events into good and bad. I will, however, continue to live in the present, mindful of focussing on each moment as it comes.

The image I’ve chosen today to illustrate the word divided is a pie. We divide whole pies into slices to feed others and ourselves. If a thing must be divided I prefer to look at the possible positive outcomes from its division.