Tag Archives for chronic illness

The Pain in Fragile Human Connections

Life has a way of reminding us of how fragile each of us and each relationship connecting us can be. As I’m working through my recovery from surgery and ongoing chronic pain, I’m trying to support a younger cousin to hold her life together while it disintegrates in front of her. She’s pregnant with her third child and her partner walked out on her and their two young children, who are five and two, days after her doctor ordered her on bed rest. From the sounds, and looks of things, he’s been planning to leave for some time but failed to mention it to my cousin who is now eight months pregnant.

As much as I’ve seen and experienced in my life, this shocks me, and I don’t understand – even with my parents’ history – how someone can walk away from his or her young, and unborn, children. I don’t understand how one person can believe they have the right to make such a significant decision knowing it will negatively affect the lives of four other people and move on with their life without missing a beat. I don’t understand what he tells himself when he chooses not to answer his phone when my cousin calls him in the middle of the night because she might need something for one of their children or she might be experiencing severe cramping, or be in labour – premature or active. I don’t understand how he can cut himself off emotionally from having any interest in knowing how the child she is carrying in her belly is thriving – or not. He doesn’t attend her prenatal appointments, he doesn’t ask about test results, he doesn’t ask about her pain or if she’s resting and he never asks if she’s eating well, or if she needs help caring for their other children.

I know that no relationship is perfect – and I certainly don’t believe my cousin has no fault in the breakdown of this one – but I don’t understand how he could choose now to leave. What did he tell his five-year old daughter when she asked where he was going as he packed his things? How does it feel not to be there when his children wake up in the morning and when they go to sleep, when he has been there every day of their lives since they can remember? How did it feel when he walked out the door leaving the heavily pregnant mother of his children behind?

I’ve been speaking to my cousin every day since this crisis erupted in her life a few weeks ago. I don’t believe the pain I’m feeling because of my illness is anywhere near as severe as the pain she’s feeling from the breakdown of her family. To ease my pain I can take pain medication but there is nothing I can offer her to reduce her pain. She speaks of her heart breaking. I can offer no cure, but because I’ve had my heart broken, I know the only balm that will give her pain relief, and possibly heal the rupture, is time.

I also know I must show her that our connection is not fragile. However, the only way my fragile, pained body can show that is with open ears and open heart, and I hope that’s enough to help keep her whole and strong.

 

The Five Stairsteps – O-O-H Child

Gratitude and Creativity: What Cannot Be Compared

There is something in the thoughts and shared writings of my friend Bert at who is bert that inspires me to write poetry. His writings pull words out of me in combinations I’d never before conceived and I am filled with joy by the process and my finished work. Bert’s silent share 127 made me sit up late last night to write, when a moment before I was close to slumber. Thanks again Bert.

What Cannot Be Compared

Successful Surgery With A Disappointing Recovery

It’s been four weeks since I had surgery. By all accounts, the surgery was a success. It was a success because they didn’t have to remove any of my bowels, especially my rectum. What they did remove was the mysterious growth that measured about 3cm x 3cm and was attached to my rectum but not growing out of it, and still has yet to be properly named. They also removed the organs the mysterious growth damaged, which were both of my fallopian tubes. In addition, there was a large cyst growing quite happily on my right ovary, which the surgeon removed without damaging my ovary. The surgeons sent everything they removed from my pelvis to pathology for testing. Since I haven’t received any calls requesting that I must urgently meet with any of my doctors, I’m assuming either they haven’t found anything too unusual or they still don’t know what the mysterious growth is.

When I’m finally healed from the surgery, I will have a vertical scar starting just below my belly button and extending down my pelvis measuring 10cm; or 3.9 inches for you non-metric converts. I’m grateful it’s that small because it would have been much larger if any of my bowels had to be removed, and I could have had an ileostomy attached to my abdomen. However, in place of those things, I will also have scars on my abdomen from the allergic reaction I had to the white, adhesive surgical bandage they placed over the steri-strips used to hold my incision wound stitches together. The allergic reaction I had caused my skin to develop large blisters around the edges of the bandage. I now have scars that show an outline of where the bandage was. I can only hope the scars will fade in time.

Apart from the allergic reaction to the surgical bandage, the big disappointment is that my pain is not gone. When I say that I’m not referring to the surgical pain, which is almost gone, I’m talking about the pain I’ve been living with for the past two years. The first signs that it was still with me came on the day they removed my epidural. Within a few hours of it being removed the old leg, hip, and back pain came back with a vengeance and my blood pressure jumped above 160. The nurses called the doctors from the Acute Pain Service to get my pain down to a level I could bear. That took a while and the whole time they were working on me all I felt was fear. Fear that what the doctors predicted prior to surgery was coming to fruition: I could have a major pain flare after surgery that could not be controlled and I might never be pain-free.

As I’m writing this my legs, right hip, and right lower back are hurting. I’ve been having this pain to varying degrees since they removed the epidural and patient controlled anesthetic (PCA) pump. To compensate for their removal and my body’s response to the surgical pain or body trauma as some doctors prefer to call it – at least I’m assuming these are the reasons – I am now taking pain medication at a dose that is just over three times higher than what I was taking before surgery. That scares me more than the pain. It scares me that before surgery, I was taking a significant dose of pain medications that didn’t always ease my pain and now this higher dose is barely doing the same.

My pain specialists are holding on to optimism. They believe that time will be my healer. They have me working on tapering the doses of my pain medications to a point where my pain is managed with the lowest doses possible. Until then I will try to live as normally as I can, which now includes accepting help from others without resisting, and monthly appointments to the pain clinic to monitor my progress.

 

OK Go – Here It Goes Again