Tag Archives for health

Never Doubt Your Lived Experiences

Being ill with all these glorious old and all the wonderful new symptoms is teaching me a lot about the people in my life and myself. However, I think the singular most important thing is that I should never allow another person – not even a doctor – to make me doubt my lived experiences. What I’m living through cannot be completely understood by another person, so why should I allow another person to question my experiences. Why should someone else get to tell me how much pain I should be feeling, why I shouldn’t take so much pain or other medications, or believe they have the right to question why my surgery didn’t deliver the results they expected. Why am I allowing their questioning about my health to make me doubt the value of my lived experiences?

I’ve caught myself allowing some of these doubts to creep in before. This morning a close friend reminded me why I shouldn’t allow that to happen. I spoke to him yesterday about the swelling in my legs and feet then sent him a photo so he could see the extent of it. He called me this morning to tell me how shocked he was by the photo. His exact words were, “When someone tells you their feet are swollen you try to imagine it, but when I saw the photo of your feet I gasped.” He was shocked at how “unrecognizable” my feet are. He said he couldn’t imagine how I must feel or what I’m going through while trying to cope with this on top of everything else.

His expression of empathy toward me was the jolt I needed to remind me that I should never doubt myself. Because of doubting myself, I was delaying going to see my family doctor to get my legs and feet checked because I told myself the swelling isn’t a big deal – the swiftness with which my doctor responded to my email yesterday clearly says I’m wrong. I downplayed this symptom because I was allowing the voices from other people telling me I should be better by now to cloud the reality I’m living with. I’m not better yet. My surgery did not eliminate my pain. I’m taking a significant amount of pain medications because they make it possible for my body to move so I can do basic daily tasks. My legs and feet are swollen beyond recognition and the swelling is adding to the difficulty I already have with walking.

What I’m experiencing is real. What I read that is written by others with health issues, general life issues, or just things from their lives they want to share, are real experiences. No one ever has the right to make another person doubt their lived experiences – their reality – and I have to remind myself of this more often.

 

Adele – Chasing Pavements

I Have An Important Date

Yesterday afternoon, I got great news. My new surgeon made room for me in his summer schedule, which means I’ll be having surgery sooner than I expected. I am scheduled to have surgery on August 11th. I didn’t know how to react to the call. I’m happy that after such a short timeline from his second opinion in April to my follow-up consultation at the beginning of June that his conviction about working to improve my quality of life has come to fruition. But, my surgeon’s administrative assistant felt compelled to tell me that I didn’t have to take the date if it’s too soon or doesn’t work for me for any other reason because she recognized how stunned I was by the news. I assured her there is no reason to reschedule me. I think waiting two years to have someone, anyone, take decisive action with the intention to get me better is long enough.

I’m also full of anxiety. I’ve had surgery before, but this surgery is the biggest medical procedure I’ve had in my entire life. I’ll be on the operating table for three hours – or longer – as at least three surgeons work on removing the growth that is invading my pelvis and repairing the damage it may have inflicted on multiple organs. The known possible outcomes that fall on what I’ll characterize as the negative plane of the spectrum could drastically change my life. Not to mention, my surgeon predicts a minimum five nights stay in the hospital post-surgery – if everything goes well – that could turn out to be longer depending on what they find or how much of my rectum he must remove. Yet, I know that there is a positive, bright side of the same spectrum that could mean the end of my pain and the beginning of what’s next in my life, now that my eyes are open to the suffering that exists in the lives of so many people because of chronic pain and chronic illnesses.

Still, mixed into the confused pool of emotions I was excited enough to call or send messages to all my friends and family who support me through this illness at every turn – good or bad. Everyone I connected with was very happy to hear the news. They’ve all been waiting with great anticipation since I told them I would most likely have a surgery date for the end of the summer. Those who expect to be involved in my aftercare immediately reminded me of the commitment they’ve made to me to help in whatever way they can when I’m released from the hospital. Some made even grander gestures of support, offering to take me into their homes for my entire recovery. All of this continued support means everything to me and I know I’ll never be able to repay it, but I also know that without it I wouldn’t have made it this far.

I have an important date and my hope is that when it ends I’ll be on my way to better health.

 

Mr. Mister – Broken Wings