To Date (Or Not) With Chronic Pain

Some months ago, a friend I’ve known since junior high school had a very pointed conversation with me about dating and intimate relationships. He caught me off guard with his questions about my romantic life or lack of one. He was curious to know why, since becoming ill just over three years ago, I haven’t dated at all. His concern was that I am allowing my illness to define me and overtake my entire life. He pointed out that I am more than my illness and pain and that people with more severe disabilities and/or debilitating health conditions still manage to engage in fulfilling intimate relationships.

In our conversation, I told him I couldn’t get into a relationship because I was focusing on my health and all I need to do to restore it. In return, he asked how long I planned to focus on my health alone since almost three years had already passed. Would five years be enough or maybe ten? What would happen if I let all those years pass without any improvement to my health and never taking the time to explore the possibilities of sharing my life, even with an illness, with someone?

Interestingly, he didn’t talk about what I might gain from dating or being in a long-term relationship. He talked instead about what I have to offer. It was embarrassing to hear him describe me so positively, especially at a time when I don’t usually feel attractive, engaging, and bright – the brightness of my intellect is often dulled by pain and pain medications – nor do I feel particularly sexy. Feeling sexy is hard when pajamas and sweats have become my standard wardrobe staples.

Nonetheless, I promised him I would think about all he had said to me. And think I did. The first thing I thought about was the person I had started dating a couple of weeks before becoming ill and how uncomfortable I was being so vulnerable with someone I’d known for barely two weeks. As he called the ambulance, stayed with me in the emergency room, and visited me practically every day for the first week of my hospital stay, I was grateful for his support and kindness. However, having someone I hardly knew see me that way was overwhelming in the context of so much unknown. It didn’t feel right to move forward with a relationship. It felt unfair to burden him with that level of responsibility when we didn’t even know each other’s favourite colour or foods.

Thinking about that conversation with my friend led me to deciding I would give online dating a chance. I set up a profile detailing my interests and what I look for in a partner, I posted recent pictures of myself where I look happy and healthy, and then I waited for interested prospects to contact me. I wait instead of initiating contact with anyone who piques my interest because I’m still uncertain about how to explain my current life circumstances. The thought of telling a potential partner about my daily struggle with pain still causes me great anxiety. Although my hope is that those feelings will soon change.

However, being online and exchanging written messages about my interests and who I am, as a lead up to deciding whether to meet in person, has been helpful. It gives me a chance to sort through and figure out who, of all those I communicate with, might be the type of person who would not be phased by what is happening in my life now. It’s also a chance to rediscover the part of myself I’ve neglected because of my pain and better understand how I’ve changed in recent years. Being online also provides a way for me to manage the pace of the process, while making sure I don’t feel too overwhelmed.

I have to admit that, with my friend’s urging, I am opening myself up to the possibilities of what my life could be like, even if I’m never pain-free. I know that not everyone I meet will be as compassionate and open to my situation as the friend I’ve known since I was a child, but now I’m hopeful for the chance to meet someone who is.

Red (Maybe) Tulips Sketch

 

All Those Seeds

I read a post from someone who visited my blog earlier today and it reminded me of what I went through this time last year. I was in another downward spiral because my reluctant surgeon couldn’t seem to move far enough forward in her thinking to get me into surgery. For almost a year, in one appointment after another, she sent me staggering emotionally from hope to despair about what my life might look like based on one worst-case scenario after another. She eroded any confidence I might have held in her. Thankfully, even through the fog of all my pain medications and my endless pain, I was able to feel and recognize that I deserved better than what she was offering.

The few visits I had with my second opinion surgeon, led to swift action and although I wasn’t cured of my pain, at least the thing that was growing inside my pelvis that started all of this is gone. Without the confidence and compassion of my second opinion surgeon, my fears and anxiety would have grown exponentially. Instead of making calm, informed decisions, the way he did, and now the rest of my current medical team help me to; everything would have continued to be reactionary based on my desire to stop feeling pain without understanding the suspected source and mapping out the best treatment plan for me.

I hope Snowdroplets finds the same compassion, expertise, and thoughtfulness I did as she seeks out her second opinions and makes her choices. I also hope that mirroring her words back to her will help to keep her positive and confident that seeking out doctors that make you feel comfortable and secure is the best medicine.

 

All Those Seeds

 

Surgery By The Numbers

Yesterday I met with my surgeon to discuss a laundry list of questions I started putting together as soon as he made the decisions that I need surgery and he would be my surgeon. My list consisted of twelve detailed questions with bullet points to cover all the possible combinations of what could happen during and after surgery; and how he might address all of those issues. He was very patient with me. With his team of two surgeons, he answered all my questions.

He gave me answers that included statistics about the probability about whether some things might or might not happen. For instance, there is a 10% chance that I might need a blood transfusion during surgery. That 10% depends on whether there are large blood vessels in or around the growth or other organs that could be injured in the process of removing the growth and cause significant bleeding. From my perspective, 10% is not a big number for probability of risk. The other statistical numbers he gave me were under 10%, and these low numbers gave me comfort.

He also talked numbers in terms of the size of organs. Did you know that your colon is about 5 feet or 60 inches long? He talked about how much of your colon and other organs you need to function normally. However, the one organ I’m most concerned about is my rectum. The rectum is about 18 centimetres or 7 inches long. According to my surgeon, you only need about half of your rectum for normal bodily functions. He does not believe that he will have to remove that much of my rectum. Therefore, I won’t need an ileostomy – temporary or permanent. Still, he did caution me again that imaging never tells the full story, so although he feels positive about what he will find we’ll have to wait and see what happens when he makes the incisions.

The last set of numbers he talked about related to my recovery. The typical recovery time required for someone who undergoes a resection – where everything goes well – is about six weeks. He will release me from the hospital after five nights if I am eating without any issues, there are no leaks in my resection, and my bowels are functioning normally. I will have my first post-surgical check-up three to four weeks after I leave the hospital. My surgeon will examine my wound to determine how well it’s healing. I will have staples in my incisions so he can remove them if I develop an infection. He will also use benchmarks like how I’m tolerating foods – solids vs. liquids – and how well my digestive system is functioning from top to bottom.

Surgery By The Numbers - My Hope

If everything goes well with the surgery, the rest will be left up to the pain specialists to manage my pain. My surgeon believes removing the growth will eliminate my pain. I hope he’s right. I know I have to be realistic based on what I’ve been living with for the past two years, but I hope his surgical skills combined with his optimism will lead to a full recovery of my health.

 

Brian McKnight – Win