Tag Archives for illness

Pathology Report: I’m Breathing a Little Easier Now

My surgeon received my final pathology report. None of the organs or tissues removed showed any signs of cancer or any other diseases that need monitoring. The mysterious growth is less mysterious now because it’s not the congenital disease initially believed and it’s not a cancer. Now, it is more clearly a cystic growth that my doctors view as incidental to leading them to discover my chronic pain condition. The chronic pain is now the mystery that requires solving.

To solve that mystery I will go to monthly appointments at the pain clinic. I will also work to taper my pain medications to a lower dose based on what my body can bear. In my last meeting with my pain specialist, we discussed trying acupuncture to see if that gives me any relief. She’s open to trying anything, as am I, which does not require another invasive procedure but may deliver some positive results.

The strangest part about all of this is that my family and friends, with whom I’ve had the opportunity to share the news, might actually be more relieved and happy than I am. I don’t mean that I’m not happy that I don’t have cancer. I mean that I’m disappointed that after two years, so many invasive procedures, including this major surgery and an ocean of pain medications, I still don’t have a final diagnosis. I’m still unable to perform the simple act of going for a walk without suffering painful consequences and I’m still stuck inside my approximately 700 square feet of space most days because of this pain. Even though I know it would have been close to miraculous for the pain to be gone so soon after surgery, I want it gone.

Just over a year ago, I decided to approach my condition as if it was something I had to live with long-term to avoid this kind of disappointment. However, if I’m being honest that wasn’t a real decision or commitment to a new way of living. I was still bargaining with the universe, even if I didn’t want to admit it. I was still desperately clinging to hope that there would be no permanence in this situation. I know this still may not be permanent, but I’m not sure it’s wise for me to grasp so firmly, to hope about what might not be if my pain mystery remains unsolved.

Instead of falling on either side of the line of what could be permanent, I’ve decided instead, to take the approach of breathing a little easier for now. I’ll continue breathing easier unless the day arrives when breathing easy hurts too.

 

Anna Nalick – Breathe (2am)

 

The Pain in Fragile Human Connections

Life has a way of reminding us of how fragile each of us and each relationship connecting us can be. As I’m working through my recovery from surgery and ongoing chronic pain, I’m trying to support a younger cousin to hold her life together while it disintegrates in front of her. She’s pregnant with her third child and her partner walked out on her and their two young children, who are five and two, days after her doctor ordered her on bed rest. From the sounds, and looks of things, he’s been planning to leave for some time but failed to mention it to my cousin who is now eight months pregnant.

As much as I’ve seen and experienced in my life, this shocks me, and I don’t understand – even with my parents’ history – how someone can walk away from his or her young, and unborn, children. I don’t understand how one person can believe they have the right to make such a significant decision knowing it will negatively affect the lives of four other people and move on with their life without missing a beat. I don’t understand what he tells himself when he chooses not to answer his phone when my cousin calls him in the middle of the night because she might need something for one of their children or she might be experiencing severe cramping, or be in labour – premature or active. I don’t understand how he can cut himself off emotionally from having any interest in knowing how the child she is carrying in her belly is thriving – or not. He doesn’t attend her prenatal appointments, he doesn’t ask about test results, he doesn’t ask about her pain or if she’s resting and he never asks if she’s eating well, or if she needs help caring for their other children.

I know that no relationship is perfect – and I certainly don’t believe my cousin has no fault in the breakdown of this one – but I don’t understand how he could choose now to leave. What did he tell his five-year old daughter when she asked where he was going as he packed his things? How does it feel not to be there when his children wake up in the morning and when they go to sleep, when he has been there every day of their lives since they can remember? How did it feel when he walked out the door leaving the heavily pregnant mother of his children behind?

I’ve been speaking to my cousin every day since this crisis erupted in her life a few weeks ago. I don’t believe the pain I’m feeling because of my illness is anywhere near as severe as the pain she’s feeling from the breakdown of her family. To ease my pain I can take pain medication but there is nothing I can offer her to reduce her pain. She speaks of her heart breaking. I can offer no cure, but because I’ve had my heart broken, I know the only balm that will give her pain relief, and possibly heal the rupture, is time.

I also know I must show her that our connection is not fragile. However, the only way my fragile, pained body can show that is with open ears and open heart, and I hope that’s enough to help keep her whole and strong.

 

The Five Stairsteps – O-O-H Child

Gratitude and Creativity: What Cannot Be Compared

There is something in the thoughts and shared writings of my friend Bert at who is bert that inspires me to write poetry. His writings pull words out of me in combinations I’d never before conceived and I am filled with joy by the process and my finished work. Bert’s silent share 127 made me sit up late last night to write, when a moment before I was close to slumber. Thanks again Bert.

What Cannot Be Compared