Surgery Pre-Admission: Who Hit The Hyperdrive?

I feel as if my life is in hyperdrive since I got my surgery date. Yesterday while I was having lunch with a friend I hadn’t seen in eons, our conversation was interrupted by a call from my surgeon’s office telling me that my pre-admission appointment was scheduled for today at 11:00 AM. I know my surgery is just a few weeks away, but everything is moving so quickly I can barely catch my breath.

This morning I went into the Pre-Admission Department at the hospital at 10:45 AM and I didn’t leave until just before 3:00 PM. Seven different people handled my chart. The first was a dry, nondescript, administrative clerk who completed my intake making sure all of my information was current and correct, that I have an emergency contact, and confirming that I understand the reason I need surgery. I found that funny in an “I better know by now why I need surgery or I’m in big trouble” kind of way. She had me sign all the necessary consent forms then directed me to the waiting room from which I was eventually collected by a lovely, bubbly nurse named Jean.

The entire time I was with Jean was light and filled with laughter. She went over some of the same information the clerk had covered then realized that some necessary people in the pre-admission process had not been contacted to come speak to me. She disappeared from the exam room for about ten minutes and walked back in triumphant that she had been able to contact Jo and Joan who were both available to come speak to me about vital post-surgery information. Jean’s responsibility was to record all my medications, confirm any allergies, and cover everything I have to do the day before and the morning of surgery. On the day before surgery, I have to fast all day except for the clear fluids I must drink because I have to do a bowel preparation similar to what you do before a colonoscopy. I did it last year for a colonoscopy and it made me feel awful, so I’m not looking forward to doing it again. I also have to shower with a special antiseptic soap the night before and the morning of the surgery. I had to buy both the soap, which comes with special instructions for the order to wash your body parts, and the bowel preparation solution from the hospital pharmacy on my way home.

The next person I saw was Jo, the Ileostomy Nurse. It is her job to find the best spot on a person’s abdomen for the placement of a stoma. What she actually has to do is draw a mark on your abdomen using a kind of permanent ink pen. Unfortunately, the timing of my surgery falls outside of what she considers an ideal window of time for a mark to still be visible enough for my surgeon to see if I end up needing to have a stoma. I will have to call her the week before my surgery and go into the hospital so she can draw on me – I’m lucky the trip to my hospital is not a long one. Jo will also recommend – if I need one – which of the available types of stomas she believes will work best for my body type and she will teach me how to care for it. As lovely as she was to me, my hope is that the mark she makes on my abdomen will not have to be used.

Then I met with Joan. Joan’s job was to prepare me for what to expect after surgery. When will they make me sit up for the first time? When will I have to get out of bed and walk for the first time and for what distance? How will my deep breathing allow them to gauge my pain level? When will I be allowed to drink something? When I will have my first solid foods – which may not fall within the realm of what’s considered normal because my surgeon has very strict rules for his patients after bowel surgery. She also explained the proven science behind these benchmarks and a few things I had never heard of before. For instance, after surgery, chewing a stick of sugarless gum triggers a reaction in the digestive system that helps you pass gas, which is a sign that your bowels are working. So I have to take a pack of sugarless gum with me to the hospital that I will chew three times a day to get my digestive system working more quickly and easily. This will be interesting because I never chew gum, but I suppose I can make an exception this one time.

Joan was followed by a lab technician whose name I can’t remember, but who had a cheerfully coloured manicure. She had a pleasant demeanor and was sensitive to my need to have her use the butterfly needle usually reserved for children because my veins don’t behave as they should during blood collection, and the children’s needles minimize the pain and bruising. She took five vials of blood for a variety of tests, and although she told me what they were for, the only thing that stands out in my mind is a pregnancy test – HA! The lab technician with the cheerfully coloured manicure also did my ECG, which was finished in less time than it took her to place all the ECG pads and electrodes on my body. I hope the test showed that my heart is still in the fight.

My Anesthetic Clinic consultation was the last act of the day. An Anesthesiology resident came in to see me just as my friend J and I each finished inhaling our lunches of coffee shop sandwiches and warm donut holes. He had a form with mandatory sections that needed information. I had to jump back to two years ago when the ordeal that is my illness started at another hospital, talk about the reason for each of my current medications, detail past surgeries and invasive procedures, and tell him what I already know about the proposed pain management plan so he knew where to start. He started with the night before surgery, which will not go as most do with me fasting because I will be completing my bowel preparation. Then he talked about the general anesthetics I will receive and the epidural option, which I assured him I do not consider an option. Upon hearing that, he launched into the list of benefits and side effects associated with epidurals where the benefits far outweigh the risks for me. He then instructed me to take my current medications on the morning of the surgery. He ended by telling me about the Acute Pain Service. How they will monitor me daily and how transitioning me from the epidural to oral pain medications will depend on how well I am coping with pain. He then left the room to check my blood test results and confer with the lead anesthesiologist.

When the Anesthesiology resident returned, he had the lead anesthesiologist in tow. They had some bad news for me. My hemoglobin levels are low, even though I’m taking an iron supplement. The level is low enough that it could pose a problem for surgery. I will receive a call from the Blood Conservation Team next week to come up with a solution to raise my levels in time for surgery so they won’t have to consider transfusing me. In the meantime, they instructed me to eat as much red meat as possible, which is going to be hard because I hate beef and I eat a mainly vegetarian diet but I’ve come too far to let a little bit of meat stand in the way of recovering my health. Is anyone having a barbeque this weekend?

 

David Bowie – Space Oddity (Ground Control to Major Tom)

Surgery Is Awakening My Fears

I’m desperately hoping that someone out there can relate to what I’m going through now and give me some feedback on how they’ve coped with it. Since receiving the news that I’ll be having major surgery a few weeks from now my anxiety levels have started shooting through the roof and I’m sleeping even less – if that’s possible. With that I’ve been having nightmares and flashbacks – which I’m certain are related to past trauma – and I feel an overwhelming need to control or make right as many things as I can before the day arrives, even though I know this won’t be possible.

I’ve created a to-do-list of the practical things I have to do: power of attorney, pre-surgery appointments, financial arrangements (pre-paying bills), and post-surgery homecare needs, among other things. The list is almost finished, except for a few people I need to contact to let them know when I’ll be going into the hospital; and detailed instructions I need to write for the people who will care for me after surgery, but I feel like what I’m doing to prepare is not enough. Logically I know what I’m doing is right, but emotionally I feel as if I don’t have a clue about what to do. Listening to my body, I’m hearing mix of uncertain sounds in response to each thing I do and feeling waves of nausea as each day closes. I’ve experienced a mind-body disconnect before, but this time is different and I can’t explain how.

Circle ZIA - 7 Dollar Store Pens

Circle – Zentangle Inspired Art (ZIA)

The funny thing is that I’m not anxious about my surgeon’s abilities. I’m somehow anxious about my body’s ability to make it through something that ultimately is what it needs to get better. I don’t know how to calm my mind and body – even with the forced activity of my art/gratitude journal, Zentangle, music, and buckets of ice cream – beyond what I need to do to keep up appearances with everyone around me that I’m fine. I don’t know what to do in the middle of the night when it’s dark and I’m most alone with myself or in the daylight when the tears start and I can’t turn them off.

Does anyone have any experience with this kind of fear?

 

OneRepublic – Counting Stars

Surgery By The Numbers

Yesterday I met with my surgeon to discuss a laundry list of questions I started putting together as soon as he made the decisions that I need surgery and he would be my surgeon. My list consisted of twelve detailed questions with bullet points to cover all the possible combinations of what could happen during and after surgery; and how he might address all of those issues. He was very patient with me. With his team of two surgeons, he answered all my questions.

He gave me answers that included statistics about the probability about whether some things might or might not happen. For instance, there is a 10% chance that I might need a blood transfusion during surgery. That 10% depends on whether there are large blood vessels in or around the growth or other organs that could be injured in the process of removing the growth and cause significant bleeding. From my perspective, 10% is not a big number for probability of risk. The other statistical numbers he gave me were under 10%, and these low numbers gave me comfort.

He also talked numbers in terms of the size of organs. Did you know that your colon is about 5 feet or 60 inches long? He talked about how much of your colon and other organs you need to function normally. However, the one organ I’m most concerned about is my rectum. The rectum is about 18 centimetres or 7 inches long. According to my surgeon, you only need about half of your rectum for normal bodily functions. He does not believe that he will have to remove that much of my rectum. Therefore, I won’t need an ileostomy – temporary or permanent. Still, he did caution me again that imaging never tells the full story, so although he feels positive about what he will find we’ll have to wait and see what happens when he makes the incisions.

The last set of numbers he talked about related to my recovery. The typical recovery time required for someone who undergoes a resection – where everything goes well – is about six weeks. He will release me from the hospital after five nights if I am eating without any issues, there are no leaks in my resection, and my bowels are functioning normally. I will have my first post-surgical check-up three to four weeks after I leave the hospital. My surgeon will examine my wound to determine how well it’s healing. I will have staples in my incisions so he can remove them if I develop an infection. He will also use benchmarks like how I’m tolerating foods – solids vs. liquids – and how well my digestive system is functioning from top to bottom.

Surgery By The Numbers - My Hope

If everything goes well with the surgery, the rest will be left up to the pain specialists to manage my pain. My surgeon believes removing the growth will eliminate my pain. I hope he’s right. I know I have to be realistic based on what I’ve been living with for the past two years, but I hope his surgical skills combined with his optimism will lead to a full recovery of my health.

 

Brian McKnight – Win